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Research Requests

Aspergers Victoria regularly receives requests from researchers to advertise opportunities for our members to be participants in their research projects. Listed below are current projects. Please ensure you investigate the requirements carefully before deciding to be involved.
If you are a Researcher and have an authorised research study that is relevant to what we do, our members and which may be appropriate for us to publicise on our website, please complete the Research Request form and send an email to the Research Volunteer with a copy of the ethics approval associated with the research. We will consider your request and respond to you as soon as possible. We would also appreciate you forwarding us the report or summary at the end of your project, so we may inform our members of the outcome of the research projects they may participate in.

Current Research Seeking Participants

What, where and how – experiences of adults with disability participating in the community without NDIS funding

This project seeks to understand if and how people with disability in Victoria, South Australia, and Tasmania aged 18-64 years who are ineligible for NDIS funding are finding and using any services and support they need to participate in the community, including key sources of support, information, and advice, and how the Information Linkages and Capacity Building (ILC) program is working in particular regions.

Who is conducting this research?
The Brotherhood of St. Laurence and Melbourne Disability Institute with support from Baptcare

Who is eligible to participate?
18-64 years of age; people with disability without NDIS funding living in Victoria, South Australia or Tasmania

What does participating involve?
Participation involves completing an online survey which may take between 10-30 minutes.

How will this research help people with Aspergers / autistic people?
The findings will provide valuable insights into how support for people with disability without NDIS funding can be improved.

How can I register to participate or find further information?
Visit the study website: https://disability.unimelb.edu.au/home/projects/what-where-and-how

Who is the contact person for this research?
Dr Sue Olney - s.olney@unimelb.edu.au / Dr Amber Mills - amber.mills@bsl.org.au

Closing date: 30 September 2021

Neurocognitive predictors of everyday fluctuations in mental health in autism

The aim of this study is to investigate how social cognition is linked with emotion regulation and mental health problems. It is hoped that this information will lead to a better understanding of the unique predictors of mental health in those with ASD, and promote the development of new interventions and tools for reducing the risk of poorer mental health in ASD

Who is conducting this research?
Deakin University

Who is eligible to participate?
Young adults (18-30 yrs)

What does participating involve?
Participants will complete an online assessment via Zoom (demographic data, questionnaires and cognitive tests) with the researcher, and will be asked to use our youth-friendly app for a period of 15 days to record daily emotional changes. Participants will do this four times each day, and each time it will only take less than one minute to reply.
Participants will receive a $60 voucher after participating. 

To participate in the study or find further information:
Contact Dr Natalia Albein Urios - Email: natalia.albeinurios@deakin.edu.au. Phone no: +61 92517813

Recruitment closes: May 2022

Does the National Disability Insurance Scheme support the quality of life of parents of children with autism spectrum disorder? A Thematic Analysis.

The current project aims to discover the impact the National Disability Insurance Scheme (NDIS) funding has on supporting the quality of life of parents of children with autism spectrum disorder (ASD).

Who is conducting this research?
Mr Jesse Gerhard (Student Researcher) and Dr Sharon Grant (Project Supervisor)

Who is eligible to participate?
Mothers, fathers, and primary carers of children with a formal diagnosis of ASD, of any level of severity (children must be under 18 years old, reside with their caregiver, and currently receive NDIS funding).

What does participating involve?
Participants are invited to partake in a semi-structured interview that will last approximately 50 minutes. Interview questions will relate to how the child's NDIS funding has impacted on the participant's own quality of life, in relation to their physical health, psychological health, social relationships, and living environment.
Participants will have the option of being interviewed via telephone, CoViu (a telehealth video-conferencing platform), or face-to-face at the Hawthorn Campus, at Swinburne University.
Benefits of participation may include parents having the opportunity to voice their experiences and be listened to in an empathic and non-judgemental way by the Student Researcher. In relation to this, research has indicated that participants can find in-depth interviewing about emotive topics a helpful and, in same instances, therapeutic experience. In terms of benefits to the community, findings of the study may provide valuable incentive for further quantitative research to be conducted in this area, and incentivise governing bodies to improve supports offered to caregivers of NDIS recipients.

To participate in the study or find further information:

Contact Jesse Gerhard - Email: jgerhard@swin.edu.au. Phone no: 0411 405 303

Closing date: April 2022

Autistic parents' experiences of home-school partnerships

Autistic parents and students have different experiences of education - we need to know more about this!
We would like to better understand the experiences of autistic parents, students, and their teachers in Australian educational settings (from kindergarten through to secondary schooling). We hope to gain knowledge about the types of supports and strategies needed to improve such relationships in the future. Autistic researchers are on the project team.

Who is conducting this research?
Professor Liz Pellicano and Dr Stacey Rabba together with Positive Partnerships and a team of autistic and non-autistic researchers at Macquarie University
This research project is being led by an advisory group that includes autistic adults, with a range of backgrounds and experiences.
Gabrielle is the autistic research assistant in this study and will be conducting the interviews with the autistic parents.

Who is eligible to participate?
Autistic parents who also have a child/children with a diagnosis of autism, who are currently engaged in education, including in kindergarten, primary school, high-school or home-schooling.
Young autistic people themselves, if possible.
Teachers who educate children with a diagnosis of autism.

What does participating involve?
We are conducting interviews (via Zoom, email, phone) with autistic parents, students and the teachers who teach autistic children.
Completing a 10-minute background questionnaire
Participating in a 1-hour interview for parents, and approximately half-hour interview for students and teachers.

To participate in the study:
If you're an autistic parent or student who wants to share your experiences, please email Stacey at stacey.rabba@mq.edu.au for an interview with an autistic researcher.

Where can I find further information?
For more information email research fellow, Dr Stacey Rabba at stacey.rabba@mq.edu.au

Closing date: October 2021

Knowing Me, Knowing You: Understanding social behaviour in autistic and neurotypical teens

Researchers at LaTrobe University are investigating how autistic and non-autistic teenagers think about their social world and how this interacts with their mood. We hope to understand how different teens understand and engage in their world; along with what sort of thinking and behavioural processes they use in their day to day lives.

Who is conducting this research?
Daniel Berends, with Prof. Kristelle Hurdy and Dr Cathy Bent at La Trobe University

Who is eligible to participate?
Autistic and non-autistic teens aged between 12 and 17 attending mainstream school, and a parent/guardian

What does participating involve?
Teens and their guardians complete separate online surveys. These will take approximately 30 minutes.
Survey participants will have the chance to win a $20 voucher!
Participants can also opt to be selected for an interview (1 hour via Zoom). This will follow the survey topics and be done with a parent. Participants selected for interview will receive a $30 voucher as a thanks for their time.

To participate in the study:
If you are interested in being involved, please let us know at: www.latrobe.edu.au/CAPteam-studies

Where can I find further information?
For more information please contact Daniel Berends at d.berends@latrobe.edu.au

Closing date: early 2022 (Jan-Feb)

A randomised controlled trial of cognitive behavioural therapy for insomnia in children on the autism spectrum

This study evaluates a brief non-pharmalogical intervention to improve your child's sleep. 

Who is conducting this research?
Dr Michelle Short, the chief researcher at Flinders University

Who is eligible to participate?
7-12 year old children with an autism spectrum disorder and co-occurring sleep problems (insomnia)

What does participating involve?
Participation will involve:
A telephone screening interview
Completing questionnaires
Monitoring your child's sleep with sleep diaries
Attending 3 individual therapy sessions, which will be conducted over the internet via Telehealth
There is no cost to participate in the program.

Where can I find further information?
If you would like to receive more information about the study via email, or to arrange a time to complete the screening interview, please contact Dr Michelle Short at sleep.autism@flinders.edu.au.

Closing date: June 2022

Person-first versus identity-first language: Informing client-centred care

There has been previous debate about the appropriate way to address and refer to people with a disability or health condition, with relation to the use of person-first language (e.g. person with a disability) and identity first language (e.g. disabled person), and whether the use of person-first versus identity-first language is considered more or less appropriate for use by people with different roles, such as: a person with a disability/chronic illness, a medical or allied health professional, a family member or carer, the media, a person of the general population, an educator or a researcher. This research will assess whether person-first or identity-first language preference is dependent on disability or health condition severity or disability identity, as well as any association between person-first or identity-first preference and quality of life. This research is important to expand the understanding about how people with disabilities or chronic health conditions prefer to be referenced, as well as factors that may influence preferences.

Who is conducting this research?
Dr Lisa Grech and Dr Amanda Olley from Monash University (Lisa) and Charles Sturt University (both)

Who is eligible to participate?
People who self-identify as having a disability or health condition, regardless of the type of disability or health condition.
The research is open to all people of an age and/or capacity that enables them to understand the requirements and complete the online survey.
People without a disability or health condition, including family, friends and carers of a person with a disability or health condition, are not eligible to participate. 

What does participating involve?
Participants are asked to complete a questionnaire that will take approximately 20-40 minutes. The questionnaire can be completed at a time that suits you from a location of your choosing, provided you have access to an internet connection. The questionnaire will ask about your preference for use of person-first and identity-first language, as well as questions about your level of acceptance and how much you identify with your disability or health condition, as well as about your quality of life.
To participate in the study:
Survey link: https://monash.az1.qualtrics.com/jfe/form/SV_d9UwIF37anUeFls

Where can I find further information?
Via the survey link: https://monash.az1.qualtrics.com/jfe/form/SV_d9UwIF37anUeFls
For any further questions please contact Dr Lisa Grech: lisa.grech@monash.edu, or phone: 0410 947 444

Closing date: October 31 2021

Factors contributing to higher education success

Researchers at La Trobe University are seeking volunteer research participants to be involved in a study about the higher education experiences of students in Australia and New Zealand.
We're wanting to learn more about the predictors of success, and barriers to accessing supports for students with, and without, neurodiverse conditions such as autism, Aspergers, ADHD, and dyslexia. It is expected that this research will contribute to improving the supports provided to neurodiverse students in higher education, and thus increase their opportunities to succeed in their education.

Who is conducting this research?
Lyndel Kennedy and Professor Amanda Richdale at La Trobe University
Neurodivergent advisors are providing guidance on this research project.

Who is eligible to participate?
You are currently enrolled at a university, technical and further education (TAFE), institute of technology and polytechnic (ITP) or postsecondary college in Australia or New Zealand, (currently studying or deferred) or
You were studying at a university, technical and further education (TAFE), institute of technology and polytechnic (ITP) or postsecondary college in the past five years.
You are aged 18 years or older
Please note, you do not need to have a neurodiverse condition to participate.

What does participating involve?
Complete an anonymous online survey, using your own computer or device. The survey takes approximately 30-45 minutes.

Will I be paid to take part in the research study?
There are no costs associated with participation in this research study, nor will you be paid. However, you may choose to enter into a one-in-five chance draw to win an AUD$25 (for Australian residents) or US$20 (for New Zealand residents) Amazon gift voucher on completion of the survey.

To participate in the study:
Access the survey via this link: https://redcap.link/latrobe.HENDS

Where can I find further information?
Participant information is available via the survey link: https://redcap.link/latrobe.HENDS
For any further questions, contact Lyndel Kennedy at L.Kennedy@latrobe.edu.au

Closing date: December 31, 2021

Romantic relationships and autism

Researchers at Deakin University are interested in what helps and what damages romantic relationships among autistic individuals. We believe this may help inform a program to support autistic people to develop better romantic relationships.

Who is conducting this research?
Researchers at Deakin University

Who is eligible to participate?
If you are at least 18 years old and:
You are autistic (you do not have to have current or previous relationship experience to take part); or
You are currently in or previously had a relationship with an autistic individual,

What does participating involve? 
We ask if you would participate in an online survey about your romantic and possibly sexual relationship experiences, as well as your personality traits. This survey may take up to 45 minutes to complete.
You may enter a draw to win 1 of 20 Amazon gift cards valued at $20 (AUD) upon completing the survey
If you completed the survey during our first round of advertising and would like to be retrospectively entered into the prize draw, please email Ying at ryew@deakin.edu.au to let us know.
To take part in the survey, go to: https://researchsurveys.deakin.edu.au/.../SV_1AoTIZpXUJR40Zv

Where can I find further information?
To help you decide whether or not you would like to participate, you may read the Plain Language Statement for this study here: https://deakin365-my.sharepoint.com/:b:/g/personal/ryew_deakin_edu_au/EfLqOVLG_a1FgLt0Ufzo1ksB1csJ_F4gaBmuCftQmSOTkA?e=hKPu6j
For any further questions, please contact Ying at ryew@deakin.edu.au

Closing date: December 2022

The CUB study: communicating and understanding your baby

A randomised-controlled trial of a behavioural intervention for optimising social and communication development of newborns with a genetic link to ASD, ADHD or Intellectual Disability.
The study commences in the third antenatal trimester of pregnancy and continues until the child turns 2 years of age.

Who is conducting this research?
CAPTeam - Childhood Autism Phenotype Team, at La Trobe  University

Who is eligible to participate?
Pregnant women whose baby has a family history of autism, ADHD, or intellectual disability

What does participating involve? 
The CUB study participation involves being randomised into one of the two study groups.  50% of participants will be allocated the developmental monitoring group, while the other half will be allocated to the intervention group.  
This research is investigating a new program that runs from the third antenatal trimester through to when the baby is 8 months of age. Through this randomised control trial, we are exploring whether this program may help parents understand more about their baby’s early social and communication skills, and in the process assist their baby’s development.  All participating babies will receive developmental monitoring as part of the trial.

Where can I find further information?
Please contact Alex Aulich, Study Coordinator by email: CUBS@latrobe.edu.au
More information at CAPTeam, Childhood Autism Phenotype Team current studies: https://www.latrobe.edu.au/psychology/research/research-areas/developmental-psychology/CAPTeam/current-studies

Closing date: December 30, 2021

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